Dr.Sorayya Hematipour

The Position of the Psycho-Oncologist in the Design and Implementation of Art Therapy Protocols for Children Undergoing Cancer Treatment

Publication date : 1405/7/4

The position of the psycho-oncologist in the design and implementation of art therapy protocols for children undergoing cancer treatment is defined within the framework of comprehensive and multidisciplinary cancer care and aims at the safe, purposeful, and evidence-based use of artistic activities to support the child's mental health, adjustment, and quality of life. The theoretical foundations of this position are based on the biopsychosocial model, principles of psycho-oncology, theories of child development, emotion regulation, and interventional approaches based on creativity. A child with cancer may experience anxiety, fear, pain, fatigue, separation from the usual living environment, activity limitations, body image changes, and worry about the future, all of which increase the need to pay attention to physical and psychological needs at the same time. In such a situation, the psycho-oncologist does not limit his role to providing psychological support, but can also help design The clinical structure of art therapy, setting goals, assessing the child's needs, coordinating the treatment team, and monitoring the outcomes of the intervention should be involved.
In the protocol design phase, the first task of the psycho-oncologist is to define the exact therapeutic goal. Art therapy should not be considered merely as a fun activity in the hospital setting, but it is necessary to specify that the intervention is designed to reduce anxiety, facilitate the expression of emotion, increase a sense of control, support adjustment, strengthen family bonding, reduce distress or improve quality of life. Goal setting should be based on the child's individual assessment and the characteristics of the disease and treatment. Age, stage of cognitive and emotional development, type of cancer, physical condition, stage of treatment, level of fatigue, pain, communication ability, child's interests, and family circumstances are some of the factors that are important in choosing the type of intervention. In young children, simple, play-based activities such as painting, coloring, character building, and storytelling can be more appropriate, while for older children and adolescents it can be used from the art office, used illustration, collage, photography, digital art, or visual narration.

In designing the protocol, the psycho-oncologist should also coordinate with the art therapist and medical team about the timing of the sessions, the duration of the intervention, and the conditions for its implementation. The child's physical condition is not stable during cancer treatment and may be able to participate in one day and require rest on the next day due to fatigue, nausea, pain, or treatment complications. Therefore, the protocol should be designed to be standard but flexible. Flexibility does not mean a lack of structure, but rather it means the possibility of adjusting the intensity and type of activity based on the child's daily situation. The psycho-oncologist can also play a role in the development of entry and exit criteria, conditions for stopping the intervention, how to refer the child in case of increased distress, and the principles of maintaining confidentiality. It is also necessary to consider the principles of infection control, safety of art materials, hospital environment conditions, and restrictions related to patients with immunodeficiency in the design of the protocol.
In the intervention phase, the psycho-oncologist can act as a clinical coordinator and psychological supervisor and advance the implementation of art techniques in accordance with the art therapist's specialty. This separation of roles is important because art therapy is an independent specialty and the psycho-oncologist should not replace the expert art therapist solely by using artistic activity. The cooperation of these two areas makes it possible to link the knowledge of cancer psychology with specialized skills of art therapy. In this model, the psycho-oncologist monitors the child's mental state and the art therapist guides the creative process based on agreed goals. If symptoms of exacerbation of anxiety, intense emotional reactions, significant isolation, or other worrying symptoms are observed, the plan should be reviewed and, if necessary, more specialized psychological interventions should be initiated or strengthened.
Research evidence on art interventions in children with cancer and other serious illnesses suggests that artistic and creative activities can be associated with reduced anxiety and distress and increased participation and emotional expression in some settings, but the heterogeneity of intervention methods, limited sample sizes in some studies, and differences in measurement tools make the results interpreted with caution. Therefore, the psycho-oncologist should distinguish between the available evidence and therapeutic claims, and avoid attributing definitive effects to art therapy without adequate research support. Art therapy is a complementary intervention in this context and is not a substitute for anti-cancer treatments or standard medical care.
One of the important uses of these protocols is to help the child regain a sense of agency in situations where a large part of his or her daily life has been affected by medical programs. The choice of subject, color, tool, and method of creation of the work can provide an opportunity to experience decision-making and control. Artistic activity can also provide a platform for dialogue about fears, concerns, and therapeutic experiences, without the child necessarily having to express difficult emotions directly. The psycho-oncologist can use this process to better understand the child's needs and adjust other psychological interventions, but should not interpret every visual element as a definitive sign of a psychological problem. The meaning of the effect should be explored in the conversation with the child along with other clinical information.
In the field of family communication, art therapy protocols can also provide opportunities for parental involvement. Parent-child joint activity may help strengthen communication, increase the opportunity for positive interaction, and create an experience outside of the medical setting. However, parental involvement should be done with the child's consent and preference and according to the family's circumstances, and should not lead to pressure to produce work or express emotion. A psycho-oncologist can educate parents about the true goals of art therapy, its limits, and how to properly support the child.
One of the important suggestions in designing future protocols is the use of pre-test and post-test assessments, valid tools for measuring anxiety and distress, quality of life indicators, and, if possible, long-term follow-up. Accurate recording of the content of the sessions, child participation, behavioral changes, and factors affecting response to the intervention can also help to develop the evidence base. Designing appropriate protocols for different age groups and comparing different methods of visual arts, music, drama, and storytelling can lead to more personalization of interventions. Also, the use of digital methods and interactive arts in adolescents can be the subject of future research.

Despite these capacities, the implementation of art therapy in pediatric cancer faces challenges such as time constraints, differences in the physical conditions of patients, shortage of specialists, limited hospital space, infection control concerns, and heterogeneity of psychological needs. On the other hand, the research evidence in some areas is still not extensive enough to suggest a single and definitive protocol for all children. Cultural and family differences may also affect the acceptance of the artistic and meaningful activities that the child and the family attribute to the creative process. Therefore, the desired protocol should have both a scientific structure and the possibility of adapting to the child's individual and cultural characteristics.
The position of the psycho-oncologist in this field can be considered as the position of a coordinating specialist, evaluator, and psychological supervisor who places art therapy in the framework of comprehensive cancer care. Close collaboration between the psycho-oncologist, art therapist, oncologist, nurse, and family can pave the way for the implementation of interventions that focus on the child's overall experience of cancer rather than focusing solely on the disease . The main value of such protocols is in providing opportunities for expression, communication, emotion regulation, maintaining agency, and supporting quality of life, while their effectiveness should be evaluated by validated research methods and should always be placed alongside and not as a substitute for standard medical treatment.