Dr.Sorayya Hematipour

Art Therapy in Cancer Survivors: Identity Reconstruction, Emotion Regulation and Neuropsychological Adjustment After Treatment

Publication date : 1405/7/3

Authors : Dr. Soraya Hematipour.
The post-cancer period cannot be considered simply a disease-free phase and a return to previous life conditions, as the experience of cancer can cause profound changes in a person's perception of themselves, their bodies, their future, social relationships, and the meaning of life. Cancer survivors may experience a series of psychological and neuropsychological experiences after treatment ends, some of which are related to the direct or indirect consequences of the disease and treatment, and some of which are the result of the person's struggle to adapt to life after a life-threatening experience. At this stage, the main issue is not just dealing with the memories of the disease, but also reconstructing a coherent self-image and balancing pre-cancer and post-cancer identity. In this process, art therapy can provide the opportunity to express, represent, and organize experiences that are sometimes not easily explained in everyday language.
From a neuropsychological perspective, cancer and its treatment can affect attention, memory, information processing speed, cognitive flexibility, emotion regulation, sleep, and energy levels. Experiencing fatigue, anxiety, pain, sleep disturbances, and worrying about the future can also put a strain on a person's cognitive capacity. Some survivors may feel like they are not concentrating as they used to, get tired faster, or need more time to perform complex mental activities. These changes, along with the emotional consequences, can increase feelings of distancing from their previous self. Art therapy can provide a platform for the gradual and purposeful activation of these capacities through activities that simultaneously engage perceptual, motor, emotional, and cognitive processes.
Post-cancer identity is one of the most important areas of adaptation. A person may have defined himself or herself with roles such as an employee, parent, spouse, student, friend, or independent person prior to the disease, but the illness may affect all of these roles for a while, highlighting the identity of the "patient." Even after treatment ends, this identity may remain and the individual may still see themselves through the lens of the cancer experience. Artistic activity can allow for the reconstruction of the identity narrative, in the sense that a person can integrate the experience of cancer into a broader story of their life, without the disease taking over their entire self-definition.
In this process, the artwork can act as an intermediate space between the inner experience and the external world. The feelings, memories, and worries that are scattered in a person's mind become more visible through images, colors, forms, movements, or creative writing. Observing this experience in the form of an external work can create a distance that allows the person to observe and think about it instead of being overwhelmed by emotion. This psychological distance can create a context for better emotion regulation and increased awareness of thought and emotional patterns.
Emotion regulation is especially important in cancer survivors, as the end of treatment does not necessarily mean the end of anxiety, fear, sadness, or anger. A person may feel joy at the end of treatment and fear of the future at the same time, be happy to return to normal life but have become distrustful of their body, or experience a sense of appreciation for life along with sadness for the changes that have been made. These simultaneous emotions are sometimes confusing for the person and they may think that they should only feel positive after treatment. Art therapy can provide a space in which the simultaneous existence of different emotions is accepted and the person does not have to reduce their experience to a simple emotional state.
The process of creating art can also create a form of attention regulation. When making art, a person devotes a portion of their attention resources to a structured activity, moving away from constantly focusing on future worries or monitoring physical symptoms. This process is especially important when the person is ruminating or constantly preoccupied with the disease. Of course, art therapy is not just a distraction method; its main goal is to allow for processing and organizing the experience, not a permanent escape from difficult thoughts. The difference between avoidance and attention regulation should be considered in the design of the intervention.
An important dimension of neuropsychological adaptation is increased cognitive flexibility. Life after cancer may present a person with situations that do not fit their previous plans. Changes in physical abilities, job changes, changes in family roles, or worries about the future may require a redefinition of goals. Due to its open and uncertain nature, artistic activity can provide an opportunity to practice choosing, correcting, redirecting, and accepting the unpredictable outcome. In the process of creation, a person learns that an image can change, a mistake can become part of the work, and a blueprint can find a new path. Such an experience can symbolically relate to the process of adapting to life changes.
The body also plays an important role in this identity reconstruction. Surgery, scarring, weight changes, hair loss, skin changes, or other treatment outcomes may alter a person's body image. The body after cancer sometimes no longer feels the same as it did before the disease, and this change can affect self-esteem, emotional relationships, and social presence. Art therapy can provide an opportunity to represent the body and gradually face its changes. The goal of this process is not necessarily to create a completely positive image of the body, but to create a more realistic, accepting, and less hostile relationship with the altered body.
Artistic representation of the body can allow a person to move the body out of the mere "sick body" and redefine it as part of their lived experience. In this view, the body is both a carrier of trauma and memory, as well as the ability to move, connect, and continue to live. This change in perspective can help reconstruct physical identity and reduce feelings of alienation from the body. Such a process should be done with high sensitivity, as exposure to body image may cause difficult memories or intense emotions for some people.
On a cognitive level, some survivors may become sensitive to minor changes in the body and interpret them as a symptom of illness. Such a process can create a cycle of selective attention, threat interpretation, and anxiety. Art therapy, along with cognitive and behavioral interventions, can help a person view their physical experience from a greater distance and distinguish between the physical sensation and the meaning that the mind attributes to it. This intervention is not a substitute for medical evaluation, and any new or persistent symptoms should still be examined within the framework of medical care.
Memories related to therapy can also be part of post-cancer adjustment. Hospital, treatment room, the sound of devices, medications, pain, or even specific smells may activate emotional memories associated with the course of treatment. Art therapy can allow for a gradual representation of these memories, helping a person to make a greater distinction between "what happened" and "what is happening now." The goal is not to erase the memory, but to change the person's relationship with the memory and reduce its dominance over the current experience.
In some people, experiencing cancer causes a change in life priorities. A person may place more value on relationships, time, personal activities, creativity, or meaning after treatment. Art therapy can give these changes a chance to become organized and invite a person to rethink their goals and values. Visualizing the future, writing a life narrative, making an identity collage, or creating a work about the things a person wants to preserve or change in their future life can help redefine the course of life.
Social connection is also an important element of adjustment. Some survivors may feel that after treatment, they expect those around them to return to their previous situation very quickly and stop talking about the disease. In contrast, the person themselves may continue to face fear, fatigue, or emotional changes. Art therapy groups can create a space for the experience of belonging in which people share a part of their experience through the artwork without the need for a full explanation. Observing the experience of others can also reduce feelings of loneliness, although group participation should be adjusted based on each person's mental and physical fitness.
From a psycho-oncology perspective, art therapy is most valuable when it is part of a comprehensive cancer survivor care program. Collaboration between a psychologist, psycho-oncist, physician, nurse, rehabilitation specialist, and other members of the treatment team can allow for simultaneous attention to a person's physical, cognitive, emotional, and social needs. Art therapy should not replace medical treatment or specialized psychological interventions, but can provide a complementary layer to the lived experience of the patient and cancer survivor.
Pre-intervention assessment is also important. The severity of anxiety, depression, fear of relapse, sleep problems, fatigue, cognitive problems, social status, and the individual's readiness to face the experience of illness should be taken into account. An artistic activity that is calming and organizing for one person may trigger difficult memories for another. Therefore, it is essential for the therapist to be flexible, pay attention to emotional cues, and respect individual boundaries.
One of the major challenges is to avoid the over-interpretation of artworks. The artwork is the product of a personal and context-dependent experience, and it is not possible to draw definitive conclusions about a person's mental state from an image alone. The therapist should receive the meaning of the work from the individual and facilitate the process of discovering meaning rather than imposing meaning. Also, art therapy should not be used to create compulsive positive feelings. Accepting sadness, anger, fear, and grief is also part of healthy post-cancer adjustment.
From a research perspective, the study of art therapy in cancer survivors requires simultaneous attention to psychological and neuropsychological outcomes. Measuring anxiety, emotion regulation, quality of life, body image, fear of relapse, cognitive flexibility, social functioning, and sense of identity can provide a more comprehensive picture of the intervention's effect. Longitudinal research is also important, as post-cancer adjustment is not a fixed process and may change at different life periods. Designing more detailed studies can determine which type of art activity, what duration of the intervention, and what form of individual or group presentation is best suited to the different needs of survivors. Art therapy in cancer survivors can be seen not as a process of simply going back to the past, but rather as an opportunity to build a new form of life after experiencing the disease. The main goal is not to return a person to the same identity as before the cancer, as the experience of the disease may have brought about real and lasting changes. The goal is to help form a more integrated identity in which the past, the experience of cancer, the changed body, complex emotions, and the future become tolerable and meaningful together. From this perspective, art therapy can build a bridge between memory and the present, body and mind, trauma and growth, fear and a sense of security, and a past identity, and a forming identity. In such a view, neuropsychological adaptation is not only a reduction in anxiety symptoms or an increase in cognitive function, but also a person's ability to regulate emotion, be flexible to change, maintain a sense of agency, communicate with the body, and continue to live despite the memory of the disease. In this way, art can become a tool for self-observation, reconstructing the narrative of life, re-experiencing free will, and creating a new meaning of being after cancer.